@Energia

Hi @Energia your situation sounds a lot like my situation. Anyway, I think getting your metabolism working is the main thing. So getting enough calories in to get the nutrients to start the healing process. B vitamins can be helpful but I would really br careful with high dosages since your in a catabolic state, getting enough calories is highest priority. So finding foods that sit well with you. It’s a tough battle, I know I’m fighting it as well

@mostlylurking have you ever tried to get off the supplements ? If metabolism starts working in theory you should be able to back of the supplements and getting the nutrients from food would you agree?

Btw, really appreciate you sharing your (healing) story. It gives hope. I'm in a similar bad spot. I'm working on my healing, I take high dose benfo, thiaminHCL seem to crash my bg hard. But it's a long road, my digestion is so poor, continuous bloating and get really dizzy and week from food

I have it, although less pain and more hyper mobility poor digestion. Your name says notmcas. A lot of the times EDS is related to MCAS.

I would look into the b vitamins and solve any nutrient deficiencies. I'm still trying to fix this as well.

DAO enzymes helped me