Gastro paresis
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I’ve removed fibre and starch from my diet which really helps a lot of things. Following dr Sydney v haas type diet for celiac (cooked bananas, curds, ground meat, gelatin, fruit juice) but I’m struggling really badly with gastro paresis.
I tried taking thiamine yesterday but then struggled to fall asleep and had a restless night. And it only slightly helped (200mg hcl and 100mg Thiamax)
My appetite is now really poor. Cascara doesn’t seem to be budging much but I’m only taking a small amount.
I take 1/2 grain armour am and pm but worry I’m not getting enough calories in now that it’s causing a slight stress response
Would the next step be trying antibiotics? I crash hard from all die off so would have to be worth it. I have most antibiotics at my disposal - considering minocylcine because I have gastritis too and erythromycin hasn’t helped heaps in the past…
Does anyone have any other ideas?
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@LucyJ said in Gastro paresis:
I’ve removed fibre and starch from my diet which really helps a lot of things. Following dr Sydney v haas type diet for celiac (cooked bananas, curds, ground meat, gelatin, fruit juice) but I’m struggling really badly with gastro paresis.
I tried taking thiamine yesterday but then struggled to fall asleep and had a restless night. And it only slightly helped (200mg hcl and 100mg Thiamax)
My appetite is now really poor. Cascara doesn’t seem to be budging much but I’m only taking a small amount.
I take 1/2 grain armour am and pm but worry I’m not getting enough calories in now that it’s causing a slight stress response
Would the next step be trying antibiotics? I crash hard from all die off so would have to be worth it. I have most antibiotics at my disposal - considering minocylcine because I have gastritis too and erythromycin hasn’t helped heaps in the past…
Does anyone have any other ideas?
My digestive tract normalized after 2 days of taking 1 gram of thiamine hcl 2Xday. That's 10 times the amount of thiamine hcl that you took. 200mgs of thiamine hcl is a very tiny dose of it because of the poor absorption rate of the hcl type. However, I did spend 4 months working up to the 2 grams/day amount beforehand.
The 100mgs of TTFD is a heftier dose because there is no issue for it to get into the system. However, I wouldn't expect a miracle from a single 100mg capsule of it. I've heard from some experts (Dr. Lonsdale, Dr. Chandler Marrs) that it can sometimes take MONTHS of taking TTFD before good improvement is seen.
I guess you could call Urgent Care or your doctor and ask if anybody would be willing to give you a 100mg injection of thiamine hcl.... I gave up on that idea myself and just high dose the stuff orally.
Magnesium would probably be helpful. I take 3100mgs of magnesium glycinate daily, divided into 2 doses. This amount equals to taking 400 mgs of pure magnesium. Here's a paper about magnesium: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7761127/
You could try a little bit larger dose of cascara too. All cascara is not created equal.
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@mostlylurking thank you. The TTFD made me feel weird and I think caused the insomnia.
I have Intra muscular thiamine injections here I think but I feel like thiamine makes me feel a bit agitated as does too much cascara.
It’s weird that the bloating and discomfort have stopped from the diet but so has the motility. I also had bad jaw pain last night which is my gut usually so I don’t know what’s going on.
I think I’ll try slowly increase the thiamine hcl. I have the no-shot sublingual one so I thought it would have done more. I’ve read you recommend having it on an empty stomach so I’ll try that
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@mostlylurking
I’ve done a bit of digging and I think I’ve got a glutamate issue. That the thiamine is causing agitation and insomnia because it’s up regulating my glutamate receptor. It’s really uncomfortable and the thought of taking any more makes me feel sick so I’m not sure I should keep taking it -
@LucyJ said in Gastro paresis:
@mostlylurking thank you. The TTFD made me feel weird and I think caused the insomnia.
I couldn't tolerate TTFD myself. I take high dose thiamine hcl orally; 1 gram, 2Xday.
I have Intra muscular thiamine injections here I think but I feel like thiamine makes me feel a bit agitated as does too much cascara.
It took me a few months to work my way up to my optimum oral dose of thiamine hcl. There was a period of adjustment. I did have electrolyte problems (needed more salt and potassium) and I did add additional supplements including magnesium glycinate, riboflavin, zinc; I rely on OJ and bananas for my potassium. Some people need more postassium and I've read that potassium chloride(?) is the one to use although I have not tried it. Don't rely on this as I may not be remembering correctly. Please do your own research.
It’s weird that the bloating and discomfort have stopped from the diet but so has the motility. I also had bad jaw pain last night which is my gut usually so I don’t know what’s going on.
Thiamine and magnesium are needed to heal the gut. My motility is good so long as I take 1500mgs of magnesium glycinate 2Xday. This equals to 400mgs of pure magnesium daily. If I forget a dose, motility doesn't work so well. Safe fiber (like grated, then rinsed, carrot) can be very helpful.
Jaw pain (TMJ) can be the result of thiamine deficiency. See here: https://www.objectivenutrients.com/insights/thiamine-ttfd-nerve-damage-trigeminal-neuralgia-hearing-loss/
I think I’ll try slowly increase the thiamine hcl. I have the no-shot sublingual one so I thought it would have done more. I’ve read you recommend having it on an empty stomach so I’ll try that
I have tried the sublingual B1, and I could tell that it was affecting my brain, but I went back to taking the high dose thiamine hcl because I know what my optimum dose for it is and I couldn't reconcile how much of the sublingual B1 I really needed to match that dose.
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@LucyJ said in Gastro paresis:
@mostlylurking
I’ve done a bit of digging and I think I’ve got a glutamate issue. That the thiamine is causing agitation and insomnia because it’s up regulating my glutamate receptor. It’s really uncomfortable and the thought of taking any more makes me feel sick so I’m not sure I should keep taking itI want to encourage you to read up about magnesium. Here are some links for your consideration:
https://www.zerohedge.com/medical/magnesium-deficiency-linked-metabolic-syndrome-heres-how-boost-intake
"Magnesium plays a crucial role in various aspects of digestive health. It helps with producing digestive enzymes, nutrient absorption, and peristalsis, the wave-like motion that propels food through the digestive tract. Insufficient magnesium can lead to constipation and bloating."also these:
https://academic.oup.com/jcem/advance-article/doi/10.1210/clinem/dgae075/7608307?login=false&_kx=iz_ZAFEEz5_QZkXHOmXi2-ywcI5VgJ0NywUo0TRFvAw.HKMsXE
and
https://www.youtube.com/watch?v=pBxWivhBdpA
and
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7761127/I hope you find this helpful.
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Systemic enzymes twice daily on an empty stomach. I have used Zymessence for 10 years. The reason I know they work is because they cleared up all of the complications that I had from lifelong, type 1 diabetes which included GP.
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@SummerPeach I think my issue is cortisol. Things that up regulate my glutamate and cause head agitation and tension = slow my gut. Now that's calmed down my gut is better but I will try the enzymes as I am prone to constipation (currently K2 seems to be causing some issues), thank you
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@LucyJ said in Gastro paresis:
@SummerPeach I think my issue is cortisol. Things that up regulate my glutamate and cause head agitation and tension = slow my gut. Now that's calmed down my gut is better but I will try the enzymes as I am prone to constipation (currently K2 seems to be causing some issues), thank you
You might consider looking into the effects of estrogen on cortisol.
go here: https://raypeat.com/articles/articles/estrogen-age-stress.shtml
search for Cortisol."People have spoken of "cascades" in relation to the adrenal glucocorticoids (e.g., cortisol) and estrogen, leading to cell damage, but really both of these hormonal cascades have to be seen as part of a more general collapse of adaptive systems, as a result of both chronic and immediate inadequacies of energy production."
also
"Estradiol stimulates cortisol production by adrenal cells in estrogen-dependent primary adrenocortical nodular dysplasia." (from the References below the article)
