Chemotherapy recovery & Narcolepsy - please advise
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Hi all,
New here, please help/ advise,
Had narcolepsy for the last 3 years, so my orexin signalling doesn't work (can't control my sleep) and I get cataplexy, where I lose control of my muscles momentarily sometimes. Decided to get a good job 2 years ago anyway, but would pretty often work 90 hour weeks and would physically push myself to the limits. Due to the nature of the job we wouldn't eat anything all day and no breaks. Sometimes would fall asleep on my feet or even start hallucinating due to fatigue.To add to this, I had chemotherapy treatment for 3 years which I finished 5 years ago. This destroyed my health as you can imagine. I'm 20 y/o.
One of the things I noticed was that while at work was that I was almost intolerant to carbs, and if anything spiked my blood sugar I'd switch off. My understanding now that my glutamate signalling, glucose metabolism, thyroid, test were all nuked, and that I was running off pure adrenaline and cortisol for about 2 years. Also lost 10kg and I was skinny before that.
Here's the blood results I got:
TSH: 4.1
T4: 14
T3: 4.3
Prolactin: 126 miu/l (was 600 when tested in January)
Cortisol: 452 nmol/l
Test: 20 nmol (was 15 when tested in January)
FSH: 8.5
LH: 3.8
Iron: 19 umol/l
DHEA: 10.9 umol/lOthers tested but these stood out. Thyroid antibodies were fine.
currently waiting on results from an adrenal stress test and urinary metabolic analysis/ organic acids test.Would really appreciate some advice, basically been in ill health to some extent for last 9 years, my hormones are tanked along with my immune and mitochondrial health. I feel as though I'm trapped in some sort of autoimmune state.
I'm very motivated and mentally energised, but feel trapped in a physical state that can't keep up.Thanks in advance.
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Chemo for what cancer at eleven Meursault?
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@Meursault said in Chemotherapy recovery & Narcolepsy - please advise:
I'm very motivated and mentally energised, but feel trapped in a physical state that can't keep up.
A little manically so?
I get cataplexy, where I lose control of my muscles momentarily sometimes.
Along with the somnolence, electrolyte disturbance probably. imo
All food and fluid behaviour in great detail by TOD please. If you can't do this for irregularity, that's step one. Routine.
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@ThinPicking Leukemia age 11.
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Sorry you went through that. How was your sense of your health in the years leading up to it?
@Meursault said in Chemotherapy recovery & Narcolepsy - please advise:
I feel as though I'm trapped in...
You'll drill the lock.
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@ThinPicking said in Chemotherapy recovery & Narcolepsy - please advise:
All food and fluid behaviour in great detail by TOD please. If you can't do this for irregularity, that's step one. Routine.
Left job last month and eating well since then and gained some weight. I can't say I had any regular pattern before now though. would eat one meal all day often and it was just when we had time. Also wouldn't drink much water. then try make up for it on days off.
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@ThinPicking said in Chemotherapy recovery & Narcolepsy - please advise:
How was your sense of your health in the years leading up to it?
Couldnt have been in better health. physically fit, ate well, etc.
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@Meursault said:
my hormones are tanked along with my immune and mitochondrial health. I feel as though I'm trapped in some sort of autoimmune state.
If that's some kind of pseudo-autoimmune issue from actually compromised immune-functions along with mitochondrial dysfunctions look into each stage of the mitochondrial respiratory complex.
Maybe start with complex IV and push CoA and cysteamine by 600-1200mg oral pantethine (not pantothenic acid) daily for at least two weeks. Could be $30 well spent to trial.
If your hypothalamic and pituitary glands are functional that slightly elevated TSH may be a hint to impaired liver function.Also, strong doubts anybody's going to adequately thank you for doing 90hrs/week. Mostly those jobs with such extra hours are stone-cold extortion shrouded in empty promises.
