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    I need help trying to figure out what’s wrong with me

    Scheduled Pinned Locked Moved Case Studies
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    • lobotomizeL Offline
      lobotomize
      last edited by lobotomize

      Copper?. Do you eat anything which may trigger hemolytic anemia? Such as methalyne blue etc i forgot other ones.

      G6pd defeciency causes blood cells to be vunrable to many diffrent factors so testing yourself for it can be helpful.

      The drink you took may have started a cascade of oxidative stress which caused blood cell die off

      K 1 Reply Last reply Reply Quote 0
      • K Offline
        KM88 @ThinPicking
        last edited by

        @ThinPicking said:

        @KM88 said:
        I’m 150 lbs and 6’2. I look sick but just last year I was 220lbs. I lost a lot fast I’ve been up and down throughout my illness.

        Hmm.

        My levels are chronically very high in the blood but don’t look bad in urine. Like I’m not making the breakdown of it. Its levels you’d see in carcinoid syndrome but I don’t have a tumour nor do I respond to antihistamines or octreotide.

        Where are you getting these diagnostics? You're under observation/on a clinicians radar? Anything other notes on your renal function?

        I was doing some reading today about high serotonin blocking chloride and salt absorption in the gut. I wonder if this could be preventing the volume from expanding.

        Have you done any experiments with 1/4 a cypro and 1/2 an aspirin? Have you done anything with taurine?

        Juice I seem to have issues with. I don’t know if I’m truly allergic to something in most juices or if it’s some mast cell thing. But I can drink liquid Ivs and things like that. I’ve went on binges of high electrolyte drinking trying to increase volume to no avail.

        Check your gulps/chugs. Sip.

        The whole oesophagus and stomach lining is supposed to do strangely intelligent things. You can find receipts for this.

        I’ve tried Cypro and aspirin many times for extended periods. And at some pretty high doses as well. I recall taking up to 60mg Cypro one day as I saw it could help carcinoid syndrome. No help on resolving anything really. And also I’ve done taurine recently.

        My respiraolgost ordered the serotonin. I’m suppose to see an endo but hasn’t happened. But it keeps coming back elevated in the blood. I don’t know if ite just a sign of how bad I’m doing or a direct cause of all this. But blocking it hasn’t been a game changer for the month or so I tried it.

        ThinPickingT 1 Reply Last reply Reply Quote 0
        • K Offline
          KM88 @lobotomize
          last edited by

          @lobotomize said:

          Copper?. Do you eat anything which may trigger hemolytic anemia? Such as methalyne blue etc i forgot other ones.

          G6pd defeciency causes blood cells to be vunrable to many diffrent factors so testing yourself for it can be helpful.

          The drink you took may have started a cascade of oxidative stress which caused blood cell die off

          I have tried copper supplementation , even the supposed bioavailable kind.

          The question is if it did , how would I stop it. I’ve tried every antioxidant under the sun. Maybe it’s an oxidizer I need. Hydrogen peroxide or something.

          lobotomizeL 1 Reply Last reply Reply Quote 0
          • lobotomizeL Offline
            lobotomize @KM88
            last edited by lobotomize

            @KM88 no antioxidant can help if you eat fava beans with a g6pd deficiency. Give us a rundown of your diet.
            Where do you live which country city

            KorvenK K 2 Replies Last reply Reply Quote 0
            • KorvenK Offline
              Korven @lobotomize
              last edited by

              Agree with lobotomize, we need some information on your diet now and over the past years

              1 Reply Last reply Reply Quote 0
              • U Offline
                user1 @KM88
                last edited by

                @KM88 barely able to walk sound like severe defiency,

                Salt dont necessary increase digestion and can reduce digestion and increase foods/liquid reflux if you eat to much.

                With the few elements you mentionned, and also initially triggered by alcohol, you should try ripe fruits and good quality dattes possibly, its pro movement/ease of movement and joints health. If this doesnt improve, with your current diet likely being muscle meat, you could be low in molydenum, selenium, manganese, so i suggest you experiment with foods high in these minerals or with supps if you are someone that do take supps. And i suggest you dont eat to much muscle meat per day.

                1 Reply Last reply Reply Quote 1
                • ThinPickingT Offline
                  ThinPicking @KM88
                  last edited by ThinPicking

                  @KM88 said:
                  I don’t know if ite just a sign of how bad I’m doing or a direct cause of all this.

                  Chicken and egg thing.

                  My respiraolgost ordered the serotonin. I’m suppose to see an endo but hasn’t happened. But it keeps coming back elevated in the blood.

                  How did you arrive at a respiratory? You didn't say anything about recent pulmonary issues, or it's not clear.

                  Did you take the most regularly recommended covid therapeutic, most commonly referred to as a vaccine?

                  And what else was going on in 2018? What do you do for a living, is it hard? (Be vague.)

                  K 1 Reply Last reply Reply Quote 0
                  • ThinPickingT Offline
                    ThinPicking @ThinPicking
                    last edited by

                    ThinPicking said:
                    And you've mentioned being unable to sense thirst but you didn't say anything about water. Are you drinking any? Maybe minimise that.

                    Ignore that. I am retarded.

                    @KM88 said:
                    I have NAFLD and very poor bile flow and major constipation.

                    1 Reply Last reply Reply Quote 0
                    • K Offline
                      KM88 @lobotomize
                      last edited by

                      @lobotomize

                      What makes you think I have this defieincy? Can it be checked with that standard 23&me type of data ?

                      1 Reply Last reply Reply Quote 0
                      • K Offline
                        KM88 @ThinPicking
                        last edited by

                        @ThinPicking said:

                        @KM88 said:
                        I don’t know if ite just a sign of how bad I’m doing or a direct cause of all this.

                        Chicken and egg thing.

                        My respiraolgost ordered the serotonin. I’m suppose to see an endo but hasn’t happened. But it keeps coming back elevated in the blood.

                        How did you arrive at a respiratory? You didn't say anything about recent pulmonary issues, or it's not clear.

                        Did you take the most regularly recommended covid therapeutic, most commonly referred to as a vaccine?

                        And what else was going on in 2018? What do you do for a living, is it hard? (Be vague.)

                        I haven’t been able to work since 2018. At the time I was working in a hardware store. The lighting department. I do recall things getting worse after I was drinking a liter of whole milk a day. A had to quit my job during this time.

                        . I have very difficult time moving around much. The pulmonary issues began after Fludrocortisone in 2023. It’s been like 24/7 wheezing on exhale since like my tissues on my lungs swelled up and it’s never returned to normal. It’s brutal. They cannot find a cause. The serotonin shouldn’t be causing this breathing issue according to them. Yes I was vaccinated twice. Never will I have another.

                        ThinPickingT 1 Reply Last reply Reply Quote 0
                        • ThinPickingT Offline
                          ThinPicking @KM88
                          last edited by

                          @KM88 said:
                          Fludrocortisone treatment in 2023 for POTS , and then prednisone seemed to make it worse

                          @KM88 said:
                          Yes I was vaccinated twice.

                          Was that 2021/2022?

                          1 Reply Last reply Reply Quote 0
                          • H Offline
                            Homo_normalis
                            last edited by

                            An acute tryptophan diet would be an interesting experiment for a day or two (if you have not already tried this). Collagen or gelatin powder as your only protein source. Fruits, maybe potatoes, coconut oil to fill out calories. You can dramatically lower serotonin this way, especially in the brain. https://doi.org/10.1073/pnas.94.10.5308. Maybe even a few hours would be enough for a quick check.

                            If you have already tried this I would be curious what resulted, how you felt, etc.

                            H K 2 Replies Last reply Reply Quote 0
                            • H Offline
                              Homo_normalis @Homo_normalis
                              last edited by

                              *"Acute tryptophan depletion diet...."

                              alfredoolivasA 1 Reply Last reply Reply Quote 0
                              • alfredoolivasA Offline
                                alfredoolivas @Homo_normalis
                                last edited by

                                @Homo_normalis Great results from this. 80g gelatin a day with an otherwise low protein diet and bromocriptine w/ caffeine is the most dopaminergic I ever felt.

                                1 Reply Last reply Reply Quote 0
                                • K Offline
                                  KM88 @Homo_normalis
                                  last edited by

                                  @Homo_normalis said:

                                  An acute tryptophan diet would be an interesting experiment for a day or two (if you have not already tried this). Collagen or gelatin powder as your only protein source. Fruits, maybe potatoes, coconut oil to fill out calories. You can dramatically lower serotonin this way, especially in the brain. https://doi.org/10.1073/pnas.94.10.5308. Maybe even a few hours would be enough for a quick check.

                                  If you have already tried this I would be curious what resulted, how you felt, etc.

                                  I haven’t tried this but I will add it to my list.

                                  I often wonder since I don’t produce any stomach acid really that I’m actually protein defieicnt. My urine is always frothy but it never comes back as an issue in the urine tests that check for protein

                                  U JenniferJ 2 Replies Last reply Reply Quote 0
                                  • U Offline
                                    user1 @KM88
                                    last edited by user1

                                    @KM88 you said you eat meat and carbs, can you explicit, what carbs?

                                    1 Reply Last reply Reply Quote 0
                                    • JenniferJ Offline
                                      Jennifer @KM88
                                      last edited by

                                      @KM88 said:
                                      My urine is always frothy but it never comes back as an issue in the urine tests that check for protein

                                      From my understanding, if urine has bubbles that pop it’s gas, and if the bubbles don’t pop, i.e., urine is foamy, it’s protein. It sounds like in your case, the frothiness is gas bubbles?

                                      Blood tests aren’t the most accurate diagnostic for thyroid function so I’m not surprised your t3 looks normal. Mine always comes back within range, even when my thyroid was suppressed. May I ask what your thyroid source was, what your thyroid stats (temp & pulse rate upon waking in the morning, and even better if you tracked them right before and roughly 30 minutes after eating) and dosing schedule were, how long you supplemented for and what your diet (food & caloric intake) was at the time?

                                      I have stood on a mountain of no’s for one yes. ~ B. Smith

                                      1 Reply Last reply Reply Quote 1

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