@BioS Thanks for the info! I will look into fibrosis reduction and pentoxifylline.

@shitty_kidneys I put this in the wrong topic. Meant for "Not Medical Advice"

I know there is not much in the way of good treatments for this specific disease. I also cannot seem to find any good data on the effectiveness of current diets/treatments. Please let me know if you have any anecdotes/stories.

So far the treatments seem to be:

• Blood Pressure Control to 110/70 (No data on how much this reduces cystogenisis)
• Tolvaptan (Caps out at ~25% eGFR reduction prevention per year and only mild cystogenisis reduction in the first year, then grows the same as it did)
• Keto diet (very little data on this too, one study says no statistically significant difference)

Other than that it appears to be a very slow but unstoppable time bomb.