@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
@yerrag said in Just found out I have reactive hypoglycemia. What now?:
@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
banana bags
you mean for thiamine iv infusion?
Yes. There's a good article at that link.
@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
I'm very hopeful that you will be able to fully recover. Or at least achieve tremendous improvement.
I am very confident of this as well.
@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
I had ataxic gait fall of 2020; I kept bouncing off the walls. I also developed a tremor in my right hand. But these resolved via high dose thiamine hcl. When I got so sick, I was taking thiamine hcl, 100mg, 2Xday, but I took it with orange juice (oops). Many of the patient Before Treatment videos show people having a hard time walking, so the Ataxic Gait seems to be a tell tale sign.
I just learned of the term "gait ataxia" or "ataxic gait.." Is this your first time to hear the term as well? Seems like had I know of this term earlier, I would not refer to it as "a symptoms of parkinson's" or "myasthenia gravis." As it would be easier to see it associated with beriberi and to vitamin b1 deficiency.
I learned about "ataxic gait" in 2020 when it was happening to me. Dr. Chandler Marrs has a video where she talks about the deterioration of her mother's health; maybe that's what made me really understand it.
@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
It seems that all of the thiamine experts that I have relied on are clinicians; they all have had hands on experience treating actual patients rather than only being off in some laboratory working with test tubes and computers. There's tons of good research you can find on line about thiamine, but expensive double blind studies are scarce because no one can patent thiamine.
Very true! This is where the practitioners of "evidence-based" scientism lord it over clinicians all the time. Sad that a majority worship at the temple of scientism. The irony is that the more "educated" one is the more he relies less on other measures of evidence that includes observation and perceiving and thinking. And rely on curated google searches and wikipedia as their research.
I hate Wikipedia; at best it's the consensus of the brainwashed.
The problem with "evidence based" scientism is that the ones in control (medical industrial complex + "science" post Project Paperclip) demand empirical double blind human studies for the "gold standard" of proof. The only entities that can afford to do that type of study are the pharmaceutical companies for things that they can patent to make big bucks on. The system is broken.
Why we are in this forum is to sidestep that illusion, yet many people here still trust google as the final arbiter.
Searching for good studies online is time consuming; the ones they want you to find are at the top; the better ones are buried further down. Using "quotation marks" around key words can shorten the search.
I'm just as glad as you are that we used this forum to confirm each other's experiencing gait ataxia and if I can confirm megadosing b1 is effective, it strengthens our "clinician" equivalent approach to the other "evidence-based' approach. If this forum can do more of this kind of discovery, it would become far more helpful and useful than other forums.
@mostlylurking said in Just found out I have reactive hypoglycemia. What now?:
Elliot Overton counsels clients in nutrition. He has a lot of good videos about thiamine.
Dr. Chandler Marrs treats patients at her clinic.
Dr. Derrick Lonsdale was a pediatrician at the Cleveland Clinic. He's retired now, is over 100 years old, takes TTFD daily, and still responds to questions in the Comments (below the articles) at hormonesmatter.com.
Dr. Costantini (died 2020), treated thousands of Parkinson's Disease patients successfully in Italy with thiamine hcl.
I have to find more time to view/read those links you shared earlier. Thanks a lot!
You're welcome.
There's an enormous amount of information on line about thiamine. It seems modern science cannot keep it hidden so well. For example, if you try to search for Thiamine and Cancer, the first studies that show are the ones about oncologists saying thiamine can cancel out the effect of their chemotherapy drugs so thiamine's bad. But further down the screen, you will find helpful research that includes info about low dose thiamine being carcinogenic but high dose thiamine is anti-carcinogenic. There's also a broad range between the low dose and the high dose that is neither carcinogenic nor anti-carcinogenic.
What serendipity, CMJ has an article on hi-dose supplementation on what to look out for in implementing hi-dose b1 supplementation. It's free for a day on substack. I wonder what's the best way to save it for my use. Perhaps print to PDF;
https://open.substack.com/pub/chrismasterjohnphd/p/thiamin-supplements-not-for-everyone?utm_campaign=post&utm_medium=email
BTW, On the third day of 1500mg b1, I saw my overnight O²Ring chart go from a score of 7.5 to 9.3, indicating lower frequency in spO2 drops, and lower levels of drops in magnitude, which had been ongoing as far back as 3 years ago, when I began tracking it.
I also saw my ECG's QRS curve increase in height signifying strong electrical voltage restored in pumping my heart, which I track to ascertain how much free my lungs was free from liquid (pleural effusion). My QTc value , a proxy marker for testing for hypothyroidism Ray has talked about, has improved from 440 msec to 385, pushing me towards hyper to normo-thyroid territory.
Still waiting for my gait ataxia to disappear.